Progress after 2 Surgeries

My latest visit with the doc went well.

I still don't have much peripheral vision and I can't see 3-D things anymore & I still have several blind spots throughout my vision. BUT. I did read three more lines of letters on the cart- so now I'm 20-40 or something like that (and I was 20-80 ).

My depth of field is off. My pupils are always dilated and huge- making it bright out all the time. I can't see very well in the dark- actually, I have an awful time seeing at night. My eyes never adjust so everything just looks black.

I have to look at my feet when I walk because I have no peripheral vision on the lower edges of my eyes. On paper it's very interesting to look at. After taking that blinking light test, the results are in the form of two black circles. Sophisticated right? The black circles are my eyes. And anywhere there is color, means I can see light in that spot. Well- the very first time I came in almost 85% of the black circles, were black. That doesn't mean I'm blind and can't see anything but it gives them a way to measure how much light my eyes are processing.


SO. This latest test came back much better- much more color on the black circles. Except in the lower left or right corner of the eye, the corner closest to the nose. If you were to divide the circle into 4 sections, that 4th is all black. Which means I can't see what's at my feet unless I look- frustrating.

I just got way off track. This last visit the doc started wanted to star doing some tests as to why this happened. Typically, IIH will takes years to discover and eventually the symptoms get bad enough & they discover it. Well mine didn't take years. It took approximately 25 days of severe symptoms which means the pressure hasn't been building very long.

So there are two ways this could go. Either it's truly idiopathic & there was no reason we can understand. Or there is something wrong with my brains drainage system of cranial fluid & I could have a block. She became kind of elusive at that point, meaning there are probably several scary scenarios that could result if there is a clot in my brain. So I go in sometime mid August for an MRV.
Which apparently is just like an MRI except it's shorter (that's good news) & it's an image of the veins in the brain. I'm praying that nothing serious will show up on the scan but who knows. More answers just gives us more room to move forward.

So that's the next step. 7 more weeks of healing for the optic nerves, at which point we'll be able to tell how much permanent damage there is & and MRV in August. Thrilling right?

In the meantime, I'm hoping to be seeing well enough to get back to work by the end of August. Even if I have to watch where I walk, I can still see good light and I'm pretty sure I can still capture a great image. I'm at the beach for a week. I'm hoping to pick up my camera for the first time since all of this started. I would love to get back to photography.